Dave's Story
I was diagnosed with
CML (Chronic Myeloid Leukemia) in October, 1999. I thought I was just getting older
and weaker (or lazier). I went to the doctor for a physical, got
blood test results and a quick referral to the Hematologist at Fletcher
Allen Health Care here in Burlington. They sit you down, give you
the bad news -- and then you start to feel sick.
I had my bone marrow
transplant on March 9th, 2000, in Boston at Brigham & Womens Hospital.
Dr. Soiffer of Dana Farber Cancer Institute is my doctor. I was released from the hospital on March 26th and they let
me come back home on March 31st. After a few months of isolation
at home, I was allowed to go out in public in June and back to work,
part-time, in September. I was able to return to work full-time
in December.
At my one-year check-up,
my bone marrow biopsy still showed signs of the Philadelphia chromosone
and, in April I was put into a study group for the new drug, Gleevec.
The plan is that the drug will kill off the remaining leukemia cells
and allow my new cells to take over. In September 2001, my bone
marrow biopsy showed no signs of the leukemia -- I'm in complete
cytogenetic remission!!!!!!!
Since then I have continued
to be in the study and my dosage has been adjusted from time to time. We've
had a couple of "inconclusive" test results, but the important ones
keep coming back negative (which is good).
Forty years ago, CML had
a 5-year survival rate of zero. Today I'm fortunate to be one of
the 50% still alive after 7 years.
We hope this page will
be useful to those of you who are also taking the Leukemia and bone
marrow transplant journey. Let us know what you think.
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Here's an
October 1999 picture of me (on the left) with my brother Jon, who
is my match (Mom always said we were a lot alike). He has donated
some of his bone marrow to help me beat Leukemia.
Thanks Jon,
you're the greatest!
Here we are
again, March 2001, celebrating my first full year with his bone
marrow.
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